Cancer & COVID Part 2: A Temporary Escape to Cumberland Falls, KY

The 4th of July holiday came on the heels of Dr. Anthony Fauci’s dire prediction that we might reach 100,000 new daily COVID-19 cases unless swift action was taken. Rather than dissuading me from traveling, this very worrisome trend convinced me it was now or never. Under that context, I judged a return to Cumberland Falls might be our first, and only, chance to escape together on a hiking trip any time soon. To be honest, I was going a little stir crazy too after being stuck at home for more than 3 months. Although the daily tally of new COVID cases peaked at a “mere” 70,000, it seems like that was the right decision since we will soon pass the horrific benchmark of 200,000 COVID fatalities.

We left late on the morning of Friday, July 3rd, and arrived at the Dog Slaughter Falls trailhead in the afternoon where we met Nataliya’s friend Larisa, another Ukrainian expatriate who lives in Lexington. We hiked the short “new” trail, which is about 2 miles round trip, as opposed to the “old” trail, which is about 6 miles round trip. The “new” trail is more popular and well-traveled, while the “old” trail is nearly overgrown. Just make sure you are at the right trailhead, otherwise you might be sorely disappointed (one way or the other)! The “new trail” was not very difficult and ends at a 15-foot waterfall on the Dog Slaughter Creek. I haven’t found much information about the origin of the name, except for rumors reported in a local newspaper column which claim that either a wild animal killed hunting dogs in the area or that people drowned unwanted pets in the creek.

There weren’t many other people on the trail, but, when someone did pass us, I always put on my mask ahead of time and tried to give them a little extra space. I kept it on for at least 10 or 15 seconds afterwards. That might seem excessive, but I’m not taking ANY chances due to my cancer diagnosis. Nataliya and Larisa let me walk ahead of them so I could keep my mask off 90% of the time. I still ended up with a little blister on my nose from all the rubbing caused by the wire in my mask as I took it on and off frequently.

My masks are made from heavy 300-thread count cotton with an extra disposable filter inside too. They were uncomfortable, but not overly so, except while hiking up some steep hills on another trail on Saturday. During our trip, I only saw a handful of people wearing masks, although Kentucky Governor Andy Beshear has since required masks to be worn in public. If I can wear a mask while hiking uphill in Kentucky in July, then you can too (baring legitimate exceptions of course)! Otherwise, you might literally kill me! Thank you in advance.

Hot and tired, we checked into our spacious cottage at the Cumberland Falls state park resort. We cooked up sausages and pasta for dinner with Larisa. Nataliya and Larisa still had lots to talk about after dinner, even though they had chatted a lot on the hike too. I also signed up for the AllTrails Pro app (https://www.alltrails.com/pro) on my phone, which has general information for more than 100,000 trails, including elevation, length, and difficulty, as well as reviews and maps. The Pro subscription adds some extra abilities such as offline maps (which can be very handy) and a safety feature. They had a sale for Independence Day, so the cost was only $15 annually (as opposed to $30). We didn’t use it a lot on this trip, but I figure it will be worth it even if we only use it a few times during the Year of COVID-19.

Laurel River spillway beach

We got up early on Saturday morning, the 4th of July, to claim an early plot on the Laurel River Lake beach on the Highway 1193 spillway. This was the destination that had sparked the whole trip – Nataliya was yearning to lie down on the sand! Our early start meant we arrived at 8 a.m. and had the beach entirely to ourselves for at least an hour. A significant crowd did not arrive until about 10 a.m. and even then, the beach was not very packed. We had enough room to keep a very safe distance from our neighbors. I lounged in the shade of a tree and read “The Liberation of Paris: How Eisenhower, de Gaulle, and von Choltitz Saved the City of Light,” by Jean Edward Smith. The book had a been a gift from my parents on Christmas 2019 that I finally got around to reading. It provided a good overview, and I was surprised by how much the German commander von Choltitz did to save Paris. He was surprisingly adept at hiding his tracks from Hitler too

Afterwards, we headed to the Eagle Falls trailhead which is on the south side of the Cumberland River across from the visitor’s center. The basic trail is about 3 miles round trip but is at least moderately strenuous with lots of climbing up and down stairs. There is “scenic” overlook on a ledge 0.1 miles above the main trail, but it was severely overgrown when we visited. It’s a lot of extra climbing to get there and you can actually get a better view of the Cumberland River along the main trail. I have acrophobia (a fear of heights) that did not really bother me until we rounded a corner about 0.3 miles from Eagle Falls (shortly after crossing a seasonal creek and passing a fork in the trail). As opposed to the rest of the trail, this portion had very little tree cover, which made me feel exposed and uneasy, so I turned back.

Nataliya at Eagle Falls

Nataliya and Larisa continued to Eagle Falls while I followed part of the southern trail fork on a 1-mile loop that approaches the falls inland. I went another half mile before turning back to rendezvous with Nataliya and Larisa. The loop was much more quiet and serene than the main path. I saw only two other people on the trail, while the main Eagle Falls path was pretty popular. It wasn’t crowded, but it the traffic was consistent and the heaviest of the three trails we hiked that weekend. It was a little harder to maintain distance from people passing on the opposite side of the trail since it was pretty steep and narrow. The loop is an attractive alternative if you are looking for a longer and quieter hike. However, there is some additional climbing if you want to consider this option.

We again cooked sausages for dinner and then attended a free astronomy workshop on the patio at the Cumberland Falls resort park’s Dupont Lodge. The three of us claimed a table for ourselves. The workshop was interesting, but the unfortunate park ranger had to shout over the clatter of the nearby air conditioning units. The holiday weekend was also an opportune time to view the famous “Moonbow” phenomenon at Cumberland Falls, which is the only place in the Western hemisphere where it can be seen. However, it was only visible late at night (no earlier than midnight according to the park ranger). After a full day of hiking, and with another busy day ahead of us, we reluctantly decided to turn in early.

We compensated by squeezing in several fun activities on Sunday, July 5th, before heading home. We reserved two spots for a morning horseback ride. The Cumberland Falls state resort park has stables who offer sessions every hour from 10 a.m. to 6 p.m. for $20 per person. The 45-minute session went by quickly! When I was a kid, my parents occasionally scheduled horseback rides during family summer vacations. However, the last time was about 10 years ago on our trip to the Pacific Northwest! My dad once had a “bad horsey” who took him for a ride as it galloped away from the group at Cannon Beach, Oregon. My mom was once stuck with a “bad horsey” approximately 20 years ago who tried to get rid of her by brushing against every tree along our path in Colorado (and there were a lot of trees there)! On July 5th, my horse was pretty tame, although he did trot quickly a few times which left my lower back a little sore the next day due to my poor posture. I had fun and it brought back fond memories. Nataliya was thrilled too – she had only ever ridden a pony at the petting zoo as a small child in Ukraine.

Before heading home, we embarked on our longest hike yet – almost 6 miles round trip to reach Van Hook Falls. Don’t be misled by your GPS, because the trailhead is inexplicably placed on the opposite side of the road from the parking lot at a “T” intersection. The roads were thankfully not very busy, but the arrangement is not ideal. The trail was relatively easy except for a short descent down to the falls, but someone has helpfully tied a rope to assist along the way. The trail was relatively deserted. The Van Hook Falls are about 40 feet tall and you can walk around behind them. We saw a rainbow in Van Hook falls too which partly made up for missing the Moonbow the previous night.

Nataliya is rarely one to pause and savor the moment (which is my preference), but she surprised me by suggesting that we stop to cool off in the Cane Creek, which we had crossed over on our final approach to the falls. The creek also has a weathered bridge across it that rests a top a large flat rock shelf. We put our gear and shoes down on the shelf and walked barefoot in the shallow, cool water which was very refreshing. After cooling off, we headed back to our car.

Overall, the trip was a lot of fun, and I was able to relax without worrying too much about COVID-19. I definitely needed to escape from my apartment too. It was a great opportunity for Nataliya and I to spend some quality time together, which has been in short supply recently. The trip also briefly restored some semblance of normalcy in a world that has had so many crises, from COVID and the election, that the jokes about them are becoming unfunny.

Since I haven’t been able to use any of my vacation days so far this year, I’ll have to find some way to use them before February 2021. My dad hopes to reschedule Paris for the fall or winter of 2020, but I think that is pretty unlikely. Given that COVID-19 is not likely to go away anytime soon (despite what our president claims), it looks like I’ll be hiking a lot in the next few months.

I would love to take an extended “digital detox” in a cabin somewhere. I really enjoyed sitting on the beach at Laurel River Lake and reading, which I haven’t done for pleasure in a long time! I would love to have a week to read, write, and hike! If I can’t tolerate a whole week, I’d settle for at least 4 or 5 days – ideally before it gets too cold. Plus, Nataliya, her son and I plan to return to Cumberland Falls in September (while staying at a distinctive treehouse) and finally change it up by visiting Red River Gorge in October. Otherwise, I’ll have to hunker down for the “long haul,” because I won’t be able to have a post COVID-19 “new normal” until there’s an effective treatment (at the very least) or a vaccine.

Cancer & COVID Part 1: The Trifecta

Despite some lingering reservations, I recently decided to go out of town with my girlfriend Nataliya for the 4th of July holiday. We returned to Cumberland Falls and the Daniel Boone National Forest in eastern Kentucky, which we had previously visited for a 10k trail run in 2019. Nataliya and I love the iconic Cumberland Falls and wanted to explore some more of the vast region (which spans across 21 of Kentucky’s 120 counties). We were eager to do so after the COVID-19 pandemic torpedoed our previous travel plans this spring to Disney World and my trip with my dad to Paris and Normandy. Even though the cancellations were disappointing, I’m fortunate to even have the means to travel so much.

Nataliya was especially impatient to take a trip; however, due to my ongoing cancer treatment, I was initially quite reticent to do any traveling. Since that part of eastern Kentucky is quite rural, there were hardly any COVID-19 cases there, plus we planned to spend all of our time outdoors which reduces the risk of infection. However, I insisted on wearing a mask indoors at all times, including the car ride down, and Nataliya eventually agreed. We also drove to the park without stopping in order to avoid more risky areas such as public bathrooms. We reserved a large two-bedroom state park resort cabin. Although the cleaning staff sanitized all the common surfaces, we brought our own sanitizers and did our own cleanup as soon as we arrived.

The COVID-19 pandemic has tested our relationship, but Nataliya has been very understanding. Having cancer puts me at high risk for serious complications for COVID-19, and a small study from Italy suggests the mortality rate for lung cancer patients who contract COVID-19 is nearly 35%. Although I am younger and “healthier” than most typical lung cancer patients, I would prefer not to roll the dice in the first place. As a result, I completely avoided Nataliya for 2 weeks after her 11-year old son returned from the Ukraine (Nataliya’s homeland) in August from an extended vacation with his grandparents. His journey involved 3 international flights, and I had to be absolutely certain that he was healthy before visiting in person. In the interim, we communicated via Facetime, which was better than nothing. Although other people have pretty much returned to normal now, my interactions are still mostly conducted through Facetime or Zoom meetings (even a recent birthday party!).

I rarely even left my apartment until recently and still remain quite cautious. I use curbside pickup at Kroger to get my groceries and workout in my spare bedroom instead of going to my regular CrossFit gym. When I do visit Nataliya, I wear a mask and keep my distance since she works at a hospital. Although she has protective equipment at work, she is still at higher risk even though she probably has less exposure as a technician than a nurse or doctor. It is the perfect trifecta of risks: COVID-19, my cancer diagnosis and Nataliya’s work environment. In addition, we live separately so we could not shelter in place together. Most other people might only deal with one or two of these complications, but only a “lucky” few must handle all three of them.

Nevertheless, Nataliya has been coaxing me to try and relax. I miss the casual affection of our lives in the pre-COVID era; for example, we haven’t kissed in months! I know she has suffered too, and I admire her patience. That’s just one small example of COVID has suddenly altered our lives in completely unexpected ways.

It’s a small step, but I did recently go out to dinner at Taste of Belgium for my birthday. I agreed only because the restaurant has outdoor seating with ample space between tables and was pretty empty on an early Sunday evening. I won’t be dining anywhere indoors or doing other things I love such as visiting the art museum or attending any concerts until there’s a vaccine (Facebook live performances will have to do until then).

I am also reticent to return to CrossFit classes at my beloved “box,” except for possibly the yoga class which can easily be done outdoors. The membership is very expensive, but I can still adapt the workouts to my very modest home “gym.” The coaches organized a competition in which I can participate from home. Teams earn points for wellness, nutrition, fitness and various bonus challenges, although I’ve never tried something like that before. It looks like fun and is a way for me to reconnect to some of my teammates who I haven’t seen in nearly six months! Although some members have left since I was diagnosed, the gym has been a constant resource and ally during my treatment. I loathe to give it up, although I might have to if it seems like no vaccine will be forthcoming in the foreseeable future. While most other people are getting back to normal, I will stay hunkered down for some time to come (especially as long as people refuse to wear a mask or socially distance).

The separation and stress from COVID have taken a toll on both of us, but our return to Cumberland Falls was a wonderful, albeit temporary, respite for Nataliya and I.

Cancer in the Workplace – My Double Life

When it came to launching my very successful birthday fundraiser for ALK+ cancer research, I was actually hesitant to create an official Facebook fundraiser, because I have several coworkers as friends even though I am not “out” at work. I am pretty sure my boss was smart enough to Google me before she hired me, and the first search results are this blog and a local TV news story about my treatment. However, she’s never indicated she knows anything about my diagnosis. It’s the quintessential “elephant in the room.”

Having a fundraiser outside of Facebook allowed me to block my coworkers from reading the posts (as I do with all my cancer-related updates). If there is a way to filter who sees an official Facebook fundraiser, I couldn’t figure it out.

Only recently did I start dropping hints by telling coworkers I had a condition that put me at very high risk for COVID-19. I haven’t been any more specific than that and nobody has pressed for more details. I recently had to decline a happy hour invitation to celebrate a coworker who is transferring to another team. I explained that I can’t drink anymore and that I am strenuously avoiding gatherings of any size. My coworkers don’t seem curious at all why I can’t drink beer, even though they know I love brewing and was a craft beer lover! That’s because my cancer medication has incurred some moderate scarring/damage to my liver over the last there years, and both my oncologist and liver specialist said consuming any alcohol would only make it worse.

My coworkers did not press for more details, and, on the one hand, I appreciate their respect for my privacy. When I started my current job in 2018, one coworker looked me right in the eyes and said, “I don’t want to know about other peoples’ problems.” It’s true that we all have enough on our plate; on the other hand, I sometimes wish they would express little more interest in me!

So far, my employer is only encouraging people to come into the office on a voluntary basis. Nevertheless, my doctor sent a letter to my boss explaining that I was high risk and should not return to the office anytime soon, but that did not provoke any further inquiries either from my boss or any HR managers. Until there is a vaccine and/or effective treatment, I will resist going back to the office as much as I can. I have been working remotely since the shutdown in March, and there’s no reason I can’t keep working at home for the foreseeable future. In fact, I hardly leave the apartment at all anymore, except for occasional visits with my parents or my girlfriend Nataliya (with masks and social distancing of course!).

My cancer diagnosis has caused me to lead a double life, because, in the pre-COVID era, I spent 9-10 hours a day with my coworkers who seemingly never knew about my condition. I am certainly not shy about discussing it in almost every other setting, except for work. At some point they might need to know, but right now I would prefer they don’t find out via a Facebook fundraiser!

I can certainly tell you that hiding a cancer diagnosis from my workers is not nearly as fun as being an international spy or secret agent. However, it’s extremely common for people to compartmentalize their lives and lead double lives in various ways (usually an extramarital affair). In fact, anyone who reads this blog could be a member of the international brotherhood of deceivers!

I have considered telling my coworkers at various points in the past 2 years since I was hired. However, I’ve always decided to defer disclosure until it becomes necessary. I was furloughed from work for several weeks during the shutdown in the spring, which showed me that I was lower on the seniority totem pole than I thought. Several more junior members of the team stayed on the job when I thought they would have been ahead of me “on the chopping block.” It was actually perfect timing to be furloughed, because I had my second round of radiation treatment at the same time. Plus, with the extra $600 in unemployment assistance, it was like a paid vacation with a raise. In the end, I preferred being furloughed to being at work!

Since the furlough proved that I have a target on my back, I fear that disclosing a cancer diagnosis would only move me to the top of list for additional furloughs or layoffs. I would like to think my boss would stick up for me but probably only as long as her own job wasn’t threatened. Cancer is tremendously expensive for employers and totaled about $264 billion in 2010. In fact, my employer provided insurance plan tried at the start of 2020 to deny coverage for my medication, which costs $14,000 (a month!!!). Eventually, my doctor convinced them to keep paying for it, much to my relief.

You might be thinking, “Isn’t it illegal to fire someone simply because they have cancer?” Yes, it is! Cancer is considered a disability under the Americans with Disabilities Act, and employers are required to provide reasonable accommodations. As of yet, I don’t need any accommodations so disclosing my diagnosis would serve no real purpose other than to draw unwanted attention. Regardless, employers still frequently fire workers who are diagnosed with cancer. I could probably get another job, or I might win a nice legal settlement if I were illegally terminated from my position. But, with COVID still raging, I’d rather not have to deal with any extra stress.

I certainly want to tell my coworkers about my diagnosis and, if I did, I am sure the news would shock and sadden them. They probably would have contributed generously to my recent fundraiser, and I suppose I left “money on the table” by keeping them in the dark. On the other hand, they did buy and hand-deliver some delicious macaroons (one of every type) from the Macaron Bar (sic). It was very thoughtful since COVID scrapped my planned return to Paris and Normandy this year. But for the foreseeable future, it seems like everyone will keep pretending like nothing is wrong.

A delicious and thoughtful birthday treat from my oblivious coworkers.

An expensive birthday gift to myself

About two weeks before my birthday, Facebook started prompting me to setup a fundraiser to celebrate it on September 3rd. I have created several before with modest success (approximately $250 for Save the Animals Foundation last year) and have donated to friends’ fundraisers too.

I thought about it for a few days and suddenly came to the realization that I should do something to raise money on behalf of cancer research, especially my specific mutation if possible. Up until this point, I had not been a vocal advocate for cancer research or fundraising. I had been content to life my relatively normal life, but now it was time to play catchup for the last 3 years!

Right after Christmas 2016, I was diagnosed with a rare form of lung cancer called ALK+ (worst Christmas present ever!), even though I never smoked. There is a patient-led advocacy group called ALK Positive that is currently trying to raise $1 million for ALK+ specific research. After doing a little research, it seemed like a great project and I decided to create a fundraiser through their online platform a week before my birthday.

My initial goal was to raise $500. I also felt like I should put some “skin in the game” so I decided to match each donation towards my $500 goal. I hoped this would encourage people to donate because their gift would effectively be doubled. I also felt like I owed it to myself and tens of thousands of people living with ALK+. I keenly felt like I was living on borrowed time again, because there is no cure for ALK+. There are treatments, but new research is continuously needed because the cancer usually becomes resistant.

Although I did not plan ahead, I came up with a few more incentives to offer. Since I love CrossFit, I offered to perform burpees (a common CrossFit movement) in exchange for a donation on a 1:1 ratio. Thankfully, only a few people demanded that I honor that pledge. A friend from the gym even offered to share the burpees with me! I was somewhat disappointed that nobody requested any of the other incentives I offered, such as teaching a history class over Zoom or hosting a role-playing game over Zoom!

I assumed it would take all week to raise $500 if I even could come close to that amount. However, about a dozen donations poured in during the first 24 hours, which quickly blew away my initial $500 goal! I received an email notification every time someone donated, so each little buzz from my phone sparked excitement and anticipation within me. I quickly became enthralled with my success. Very few things had ignited my enthusiasm recently like this fundraiser did!

Once I had $500, I wanted more! It’s literally a matter of life or death, so I felt like I was really making a difference. The money would fund research that could save my life and the lives of many other people afflicted by ALK+. To keep the momentum going, I decided to match another $500 for a total of $1,000. I reflected on how fortunate I was to have that much disposable money available, especially when nearly 60% of Americans recently said they couldn’t handle a $500 emergency expense. I am very glad I gave up on a career in journalism or teaching! Writing sales proposals is not nearly as interesting as either of my previous careers, but it certainly pays much better.

Despite my initial success, $1,000 seemed like an overly optimistic goal. To avoid flaming out too early, I shared the link to my fundraiser and a summary of my cancer diagnosis on several groups on Facebook. However, those posts only led to a few donations. Next time, I might have to branch out to other social media since I relied entirely on Facebook this year. I also posted regular status updates on Facebook and urged friends to share my fundraiser link. I was surprised by the generosity of strangers who donated about $200. I donate to my friends’ fundraisers, but I am generally reticent to donate to strangers or unfamiliar organizations. I will try to keep an open mind in the future, but there are many deserving causes. Unfortunately, I’m not swimming through piles of money like Scrooge McDuck.

This is definitely NOT me. Original source from Disney.

About 30 friends also made comments on Facebook wishing me well on my birthday too. I sent each of them a message back asking them to donate and/or share the link to my fundraiser. I though a personal appeal might be more effective, and it was. That brought in a few more donations, and by the end of the day the total was nearly $1,500! With my promise to match the first $1,000, I had exceeded my most optimistic goals! It was a small drop in the bucket for the overall goal of $1 million but every dollar will go a long way towards finding new and better treatments. I was also undaunted by the fact that other fundraisers had brought more than $20,000, but that’s something I can aspire to achieve next year!

After the euphoria wore off, I fulfilled my pledge to donate $1,000. It only took a few clicks and was a disappointingly mundane process. I was also a little anxious too because I have only made a few transactions in my life for $1,000 or more, such as buying a car or paying for a trip to France. It was an easy choice though, because the money could literally save my life or someone else’s. $1,000 is a small price to pay for that! Even if the research doesn’t create a breakthrough, it will narrow down the field of possibilities which still counts as progress. In the end, it is the best, and most expensive by an order of magnitude, gift I ever gave anyone, including myself!

I was surprised and humbled by the generosity, especially of strangers. I felt like I was really making a difference which was something that I’ve been missing since the COVID pandemic erupted. I really enjoy performing community service, and my cancer diagnosis has meant that I haven’t been able to volunteer like did in the “before times” since it puts me at very high risk for complications with COVID. It was also heartwarming to see that so many people were willing to donate. In all, about 30 people each gave about $43 on average.

The success of my fundraising campaign was also uplifting because it demonstrated how social media, Facebook in particular, can have a positive impact. I get a lot of news now from Facebook, and it serves as a good way to keep in touch with people. However, there are a lot of downsides to it as well, especially with the buildup to the November election. I have never tried to use social media/Facebook as a force for good before, and I was stunned by how effective it can be. With all the negativity in the media at the moment, the success of my fundraiser has also partially restored my optimism and faith in my fellow humans.